CLUSTERBUSTERS 18th ANNUAL U.S. PATIENT CONFERENCE


September 7-10, 2023

Join us for a long weekend of support, education, and family in Lake Buena Vista, FL. We'll kick off on Thursday evening with the Director's reception. Friday and Saturday will be full days of presentations. Sunday morning will include advocacy workshops. Lunch will be provided on Friday and dinner will be provided on Saturday.  Your hotel stay includes daily breakfast and a happy hour each evening.

 

Covid Protocol

We are constantly monitoring federal, state, and local covid health guidelines and will follow any recommendations needed. We will let you know if there are any requirements that you need to follow.

See you in Disney Springs!

Conference Information


Conference Documents

The agenda is below, and you can access all conference documents here: 

2023 U.S. Conference Documents

Scholarships

Limited scholarships are available to assist with travel to our conference.

 

Application Closed

Hotel Information

Drury Plaza Hotel Orlando Lake Buena Vista

2000 Hotel Plaza Boulevard

Lake Buena Vista, FL 32830

(407) 560-6111

Check-in is at 4:00 PM and Check out is at 11:00 AM

Parking at the hotel is $12 per day and you must be registered with our group to receive this discount.

Complimentary hot breakfast and evening drinks and snacks are included with a hotel room.

Complimentary wi-fi throughout hotel.

Room block is closed. If you still need a room, please reach out to Eileen Brewer at conference@clusterbusters.org

AGENDA (in progress)


Thursday, September 7, 2023

3:00 PM - 3:45 PM

Oxygen Demonstration - Mr. Bill Mingus

5:00 PM - 6:00 PM

Registration

5:30 PM - 8:00 PM

Welcome/Opening Remarks - Director's Reception

7:30 PM - 8:00 PM

ClusterBuddies Introduction - Ms. Anna Williams 

8:00 PM - 9:00 PM

Orientation Support Group for New Attendees

Friday, September 8, 2023

6:00 AM - 10:00 AM

Breakfast

8:00 AM - 9:00 AM

Registration Opens

9:00 AM - 9:15 AM

Announcements and Information - Ms. Eileen Brewer

9:15 AM - 10:00 AM

Introductions - Mr. Steve Keschinger & Mr. Joe McKay

10:00 AM - 10:45 AM

Clusterbusters Updates - Mr. Bob Wold

10:45 AM - 11:00 AM

Break

11:00 AM - 12:00 PM

Dr. Brian McGeeney

12:00 PM - 12:30 PM

Impact Survey Results - Dr. Katharina Kamm

12:30 PM - 1:30 PM

Lunch - Provided

1:30 PM - 2:30 PM

Grow Demo - Mr. Avery Stempel

2:30 PM - 3:00 PM

Patient Perspective - Mr. Phil Battle

3:00 PM - 3:45 PM

Busting Basics - Mr. Bob Wold and Guest Panelists

3:45 PM - 4:00 PM

Break

4:00 PM - 4:30 PM

Benefit Maximization Landscape - Ms. Eileen Brewer

4:30 PM - 5:00 PM

Caregiver Perspective - Ms. Heather Keschinger

5:00 PM - 5:30 PM

Open Discussion Session - Moderated by Mr. Steve Keschinger and Joe McKay

7:00 PM - 8:00 PM

Safe Room Sessions - Mr. Joe McKay, Mr. Joe Stone, & Ms. Anna Williams

7:00 PM - 8:00 PM

Safe Room Sessions: Care Partner - Ms. Michelle Borders

Saturday, September 9, 2023

7:00 AM - 9:00 AM

Breakfast

8:30 AM - 9:00 AM

Registration

9:00 AM - 9:15 AM

Announcements and Information - Ms. Eileen Brewer

9:15 AM - 10:00 AM

Research: What's Next? - Dr. Emmanuelle Schindler

10:00 AM - 10:30 AM

Patient Perspective - Ms. Kim Dudley Farley

10:30 AM - 10:45 AM

Break

10:45 AM - 11:15 AM

Mental Health Perspectives - Mr. Eric Diamond

11:15 AM - 12:00 PM

Behavioral and Psychological Aspects, Quality of Life, and Disability and Impact of Cluster Headache - Dr. Vera Gibb

12:00 PM - 2:00 PM

Lunch on your own

12:30 PM - 2:00 PM

Supporter Luncheon

1:00 PM - 2:00 PM

Oxygen Demonstration - Mr. Bill Mingus

2:00 PM - 3:00 PM

Safe Room Sessions - Ms. Michelle Borders, Mr. Eric Diamond, & Mr. Joe Stone

3:00 PM - 3:30 PM

Co-Occurring Headache Diseases/Misdiagnoses - Dr. Melissa Rayhill & Ms. Anna Williams

3:30 PM - 3:45 PM

Group Photo

3:45 PM - 4:15 PM

Raffles/Auction

4:15 PM - 4:30 PM

Break

4:30 PM - 5:00 PM

Ketamine - Dr. Brian McGeeney

5:00 PM - 5:30 PM

Q&A - Moderated by Dr. Brian McGeeney

7:00 PM - 8:30 PM

Dinner & Awards

Sunday, September 10, 2023

7:00 AM - 10:00 AM

Breakfast

10:00 AM - 10:30 AM

Policy Update - Mr. Kevin Lenaburg

10:30 AM - 11:00 AM

Working With Your Healthcare Provider - Mr. C.J. Spotswood

11:00 AM - 11:45 AM

Advocating for Change - Mr. Joe McKay & Mr. Ken Maxwell

11:45 AM - 12:15 PM

Advocacy/Policy Workshop - Ms. Eileen Brewer, Mr. Kevin Lenaburg, Mr. Joe McKay, Mr. Ken Maxwell, & Mr. Bob Wold

REGISTRATION



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"This is the Place"


Check out what people have to say about this conference and learn why you should attend if you live with cluster headaches.

Sponsorship Opportunities Available


To Sponsor:

Please reach out to Eileen Brewer at eileen@clusterbusters.org

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